Because enduring ennobles we won’t be discussing that

I’m still having a hard time recovering from mental illness awareness week, migraines, can’t sleep and nightmares when I can, plus waking up crying. I woke up and hollered “Molly!” a few hours ago, and I’ve been drinking a bit to take the edge off, which is nothing to me but a clue. Molly Ivins lived in this city, and this week I’m going to walk the streets she walked, the streets she urged us, in her final proclamation, to run into with glee, banging pots and pans, shouting “We are the deciders.”

No, we’re not. Over a hundred google alerts in my inbox last week promoting awareness of mental illness, and not one word about child abuse, because, do I have this right — because NAMI — a family organization — is in charge — do I have that right — in charge of mental illness awareness — NAMI, is that right? Wait, ok, so the ghosts are in my house, my people, my blood, thicker than water, kinship, my loyal perpetrators, no escape, she’s dead and I’m buried, mom without end. This is how it was, invisibility in the family, this is how it is, invisibility in the mental health system, it feels like I’m in the wrong time frame, I don’t even know where I am, it’s all seamless, positively fourth street. I read the pdf files and feel like I’m losing my mind, they use our language, capital “R” recovery — recovery is possible, expect recovery! Recovery from what? With what? Drugs and denial, symptom suppression, fuck you, my symptoms need expression, space, recognition, discharge, that takes skill, competence, — Expect Recovery — I expect Mark Eitzel is on the stereo saving me “Why do you say everything as if you were a thief? Like what you stole has no value, and what you preach is far from belief?”

That’s what they do, steal a thing of beauty and turn it into shit, “It only takes one person to change the world!” Yes and tomorrow we’ll change it back, because we write, another behavior you’ll never begin to understand.

I have to type more about me and the first thing to appreciate is that I don’t want to. This is one reason we remain invisible in mental health policy and even to our own ignorant CBT “solution focused” treatment providers, we avoid the material, and all the fixers in the system collude with us, by failing to educate themselves about traumatized personality development, because they don’t want to look at it either. It’s a human tendency to avoid the dark and depraved, it’s unsettling to sit with, and take it in day after day, it screws people up to listen. It’s about helplessness, people have a problem with being helpless, they can’t change or undo anything, they can only be witnesses, and that’s enough!

The only therapists who are of any use are not available to most of us anymore, the old school, expensive, time-intensive treatment associated with psychoanalysis is what we need, and that is not an option today.

Therapists can’t just ask outright “were you abused as a child?” Because we’ll say no, dummy, we were indoctrinated to conceal, minimize and forget what was happening. We have no language. I didn’t say a word my first year, I drew pictures, gave my therapist collages made from magazines, took her by the hand and walked her outside and pointed at a tree. It takes a year in therapy to prepare to do the work of trauma, to build trust and go at it at a very slow angle. You need an intentional therapist sitting across from you that whole year, who knows what they’re doing, consciously working to prepare you for doing the work you dread.

I have been scared for a long time, I have been thinking about it all last week, remembering troublewaits, when I didn’t even know what I was talking about, just wailing that some undefined they were taking trauma out of existence. Erasing the concept. Now I am seeing it happening. I think. Who is doing this? Is it NAMI? Am I invisible to my allies too? Do others working as activists in mh liberation who know I insist on inclusion of the trauma model know or care why I say that? Tell me, what are my Suicide Survivor Notes about? When I talk about “my hospital records” do you assume I mean psych ward, and not the general emergency room where I went to get my ribs taped up after my NAMI did what they always did? I won’t spell that out every time you know, that was my mother.

Fighting biopsychiatry is not just about getting to the truth, it’s about the specific needs and challenges facing traumatized persons in the realm of mental health, and about making general sense out of personalities that are a real foreign land, which is useful for everyone, but of paramount relevance for people in the provider system. There are maps, this has all been studied and paid for, research and books and movies and songs, and 1200 scars on my best friends arms, programmed to self-destruct, still here, heroically in the way. We are in the system, we don’t always know why we end up in a mental health facility, but I am one who does know what happened to me, and what it did to me, and that there is no cure, and that there doesn’t need to be.

51 thoughts on “Because enduring ennobles we won’t be discussing that

  1. Reading you is a physical act. Your words are wrenching

    “that there is no cure, and that there doesn’t need to be.”

    What an essential thing, a necessary thing, to know. But no one says it.

    Instead, like you wrote, they cannot bear their own helplessness. Refuse to be witnesses, preferring handfuls of drugs and coercion and leather straps and condescension. As if a pill could ever heal a soul

  2. I just dropped this off, including responses, for my therapist. With this note:

    “Read this —–. Let me teach you. You want to help me? Let me teach you. From Robin Plan, to me, to you, to others. A link is a good thing, a chain of knowledge, of awareness, of communication. Good stuff.”

  3. oh my gawd, Robin. Thanks for being so brutally honest. I thought I was alone in these views really. My older sister was bold and cruel many times to me telling me straight out that ‘I am invisible” and that I should “check out now”. Talk about no respect for life or dignity of human beings. I can’t bear it. Thanks for reminding me that we are in this together.

  4. Well, shoot, I just described myself to the Post as a person who recovered from mental illness through psychotherapy because they won’t print “psychiatric survivor”, and I can’t call him back and tell him to change it, but you’re right FP.

  5. robin…

    hello – i just wanted to let you know that they said my mom was manic depressive / bi-polar what-the-fuck-ever….

    *…(she asserted herself and it apparently annoyed my father and so he and her male doctors convinced her she was crazy)…*

    they hooked her on lithium and after 4 decades of that they noticed side effects – so they think to themselves what else can they poison her with instead eh…?

    oh wonderful – **risperdal** – do your dirty work – take a fine physical body – give it an overdose – why the fuck not – and then – watch how it shrivels up all of her organs in her physically fit body – over the course of three years – until it finally kills her (30 years before her time)…

    and they rake in their fucking money and go on their fucking trips…

    i just wanted to let you know – that **risperdal** is some potent fucking poison – and that – they are EVIL MOTHER FUCKERS…

    *…i think that it’s all a fucking anti-woman man thing / a plot – oh sure – not all men – (i really mean that – some men are okay – she said grudgingly – er – she meant to say – in a totally friendly way – yeah – that’s it) – and of course – yeah yeah sure – enough women go along with it too…*

    no shit – i had some problems getting along with my mom – however it pisses me off (understatement) that those fuckers killed her…

    i hope that you never take any of that (risperdal) crap…

    oh yeah – did i mention:

    **!!!…RISPERDAL KILLED MY MOM…!!!**

    i think it’s a pretty good general rule not to take any crap at all from anybody ever…

    – over and out from your sorta friend ramona / dusa / kim…

    …(WHO IS REALLY FUCKING PISSED)…

  6. I know it seems perverse to some to couple the concepts of honesty and beauty. I do it anyway. This entry is stunningly beautiful.

  7. Pingback: Truth is Courage is Beauty « Roses on the Moon

  8. One common complaint about NAMI is that they overlook the impact of parenting, particularly when abuse figures in. A psychiatrist that I heard once said that bipolar children were often beaten up for being bipolar. So many of us end up having the disease plus post-traumatic stress disorder.

    Yes, we have to speak to both types of mental illness. When NAMI proponents make a blanket statement to the effect that it’s only about chemical imbalances, I squirm….

  9. I’m one of those people who’s a little vaguer on what’s happened to her, but I have some idea, and I’m learning to trust that (sometimes). Anyway, lots of things you said here (and in other posts) moved me, but the last part about there not being a cure and there not needing to be one really spoke to me, and is making me think. When we’re told to change, to grow, to become something other than we are, that’s threatening. I always feel terrified but I always chalk that up to my being overly fearful (I’m well-trained, you see). But maybe it’s just fine not to want to be turned into someone else (or, more realistically, to learn to pretend to be someone else).

    Thanks for this post and everything you do.

    eeabee

  10. Joel, no, you’re doing it too and I can’t go there right now, listen. I may have started out with the whole package, I may have come into the world perfect and close to genius. Do you know that my IQ scores show me being in both the “very very superior” range in one area (cognition) and “mentally retarded” in the other (performance)? Performance is neglect, all the things I wasn’t taught how to do growing up that I had to invent and figure out how to do, that’s performance and it’s in the mental retardation range, while my intellect is in the very very superior range. The neuropsychologist was almost crying when he went over the scores with me. Try to understand the relevance of this disparity, and that the performance deficits DID NOT HAVE TO HAPPEN, I have disabilities that were beaten into me, and have accumulated 20 psych diagnoses over my lifespan that elucidate shit about my lived experience, DID THOSE DIAGNOSES, INCLUDING BI-POLAR HAVE TO HAPPEN? Mental illness is preventable Joel. This is my belief. It’s not a fact, but it is my blog and I will push you to think hard around here.

  11. The only time I seriously thought about ending my life was in 2002 when I got those IQ scores. Not because of the IQ scores but what those results point to. I hope people understand that. All my mental retardation/autism/PTSD/schizophrenia/
    disabilities/bi-polar/personality disorders/
    have the wrong names that led to prejudice and hurt and all of it could have been prevented.
    Anyone who comes to a different conclusion about the 40-point disparity in my IQ please explain and defend your argument.

  12. Yes, mental illness is preventable. I believe that. I KNOW it.

    And all I have to say about IQ scores is that they really don’t mean shit within the big picture. Fuck you very much to all the condescending assholes who look at my superior IQ scores and tell me all about MY POTENTIAL. Where is that potential?

    There’s always a label to explain why we are at fault for what we aren’t achieving. “the performance deficits DID NOT HAVE TO HAPPEN”.

  13. flawedplan: Sure. Whatever you want. But I will say this: after years of going through psychoanalysis and talk therapy and knowing every detail of what my parents did, the one relief that completed the package was the meds.

    Is mental illness preventable? Well, I know that I was predispositioned to it (relatives — genetics) and that the stress I was put through was extreme (again relatives — the way I was treated).

    The interesting questions: Why doesn’t every abuse victim turn mentally ill? Why do some turn out bipolar and others borderline?

  14. Every abuse victim I’ve known (think hundreds) had a severe and persistent mental illness. And the “personality disorder” goes without saying. The genetic argument is circular and fatuous. We’re talking about ideas, as ideas, not facts. You don’t have the facts. And I don’t like where your ideas go. You are obviously far more comfortable/acquiescent with our killers than I’ll ever be.

  15. “Why do some turn out bipolar and others borderline?”

    Labeling.

    Isn’t it fascinating how those labels tend to construct identities without respect to etiology?

  16. Oh, I love being called someone’s wrong-headed cheering squad. That doesn’t trivialize our experience or anything. Anybody seen our shiny pom-poms?

  17. If I am in obvious torment, screaming about psychiatrists, it is not because of “suspicions” but because of genuine lived experiences, horrifically abusive ones, at the hands of mental health providers.

    Being asked why I’m mentally ill when there are these mythic untold multitudes who were abused and were completely unscathed, emerged from their trials as perfect shining examples of normality is like demanding I explain why I fell when someone brutally cut me off at the knees. Why does anyone fall when they are cruelly shoved from behind? I lost my balance

  18. Thanks TMA, I had no idea. Joel’s post is about what goes on inside Joel’s head. I am more interested in clarifying his behavior here, which is about the assertion of privilege in a non-dominant space. The biological model he parrots is dominant, we can’t topple it, we bring no real threat to its privileged place in discourse. What I ask for is inclusion of the trauma model of illness and recovery, which has been articulated in both theory and application. That’s it. Stop the suppression. Include the trauma model in research funding, include those who have been through trauma therapy in evidence-based studies, include qualitative research and not just quantitative, bring clinicians into the findings, and so on.

    Privilege always responds to appeals for inclusion with the hysterical dickswinging of perceived threat. Re-assertion of dominance, as if we need a reminder. Which we don’t since we live under it. The dickswinging is to reassure the self that I am god and god is on his throne and all is right with the world.

  19. Re: Joel’s trolling

    You know, honestly, I don’t see why people get so defensive about that it HAS to be totally biological and it HAS to be fixable through medication only. Yay for you if that’s your experience. However, there are plenty of us who have been triggered through trauma or had the conditions totally induced through trauma. I was not abused as a child and I display symptoms of bipolar disorder and have close relatives with the disorder, so in Joel’s book I fall squarely into the biological category. However, my swings are generally triggered by major life events. Medication helps some; effective therapy has helped sustain my stability. Why does it HAVE to be biological? Why can’t they make a small amount of room for therapies that would supplement/replace medication and be a better tool?

    …Oh, wait, Big Pharma. Never mind.

  20. Dogmatism: Someone makes different choices than me? How dare they call in to question my entire way of life! But look, see, read their blogs, they’re all fucked up. Which means I’m OK, hooray!

  21. …but clearly any disagreement with Joel’s perception Must be due to untreated “chemical imbalance”. Of course, that also HAS to be biological… 🙄

  22. Joel, do you have the link to the New York Times article a while back that explained purported research based on foster children who were sexually abused suggested that the ones who became mentally ill because of abuse were defective. I think this is total bs. It’s like asking why do some people who smoke get lung cancer and some not and then saying that lung cancer is genetic and not effected by smoking. If that’s your belief, keep smoking but please don’t blow the smoke in my face.

    I must add that I resent the implication that someone labeled as having a mental illness is in any way inferior to someone not so labeled.

  23. “I must add that I resent the implication that someone labeled as having a mental illness is in any way inferior to someone not so labeled.”

    I missed that one. Where’d you see that?

  24. I was inferring it from the assertion that mental illness is and should be prevented. It’s almost impossible not to make that assertion at some points still maybe if I put it this way it will make more sense: abuse hurts everyone but some people are not sensitive enough to become sick over having been abused so it’s the people who stand up and complain about it, who protest about it, who help stop further abuse.

    What about the person who is abused and doesn’t get labeled mentally ill? I suspect that it’s the future abusers that show up in this camp. Who is really more dangerous, a veteran with post traumatic stress disorder or a veteran who becomes a war hawk?

  25. WTF ? Sally, how did you manage to reinterpret the assertion that mental illness is preventable as an implication “that someone labeled as having a mental illness is in any way inferior to someone not so labeled”.

    Excuse me, but I still don’t get it.

    “What about the person who is abused and doesn’t get labeled mentally ill?”

    We aren’t talking about the “dangerousness” of people with a diagnosis of PTSD for chrissake. Sometimes abused people DON’T become mentally ill, and even when they do Sally, the label isn’t simply about stigmatization. What we’re talking about here is the treatment of trauma-related mental illness under the biological drug-based paradigm of psychiatry. The labels are worth shit. Even a PTSD label is likely to get you nothing but drugs.

  26. Sorry, I’m not trying to start a flame war. I’m just responding to the idea that if some people who are abused develop symptoms we label mental illness and some people who are abused don’t develop these symptoms, these people respond to the same stimuli differently because these people are genetically differently. This may be true, no one so far has proved it, but it’s proponents always jump to the next step which is this…it’s the people who get “mentally ill” who are sick, I’m suggesting the opposite. If you think that abuse is bad (and I do) then it’s the people who don’t get “mentally ill” from abuse who are sick. The soldier who doesn’t get ptsd is the soldier who perpetuates war and perpetuating war is bad (in my opinion).

    As for whether a label is simply about stigmatization, nothing is simple.

    Didn’t mean to upset you. Must be that asbergers.

  27. No, doubt it’s the Aspberger’s, probably just the thought disorder. You said you were inferring from the assertion that mental illness is preventable , the implication that someone labeled as having a mental illness is in some way inferior to someone not so labeled. Now you change the story.

  28. Mental illness is either preventable or biological. The dementia associated with Parkinsons and Alzheimer’s result from organic disease.

    I can’t make heads or tails of the rest. But it’s true that some people who have been abused identify with the perpetrator, that’s almost the normal course of events. Sociologists refer to it as a process of “brutalization.” They become brutalized by their experience, the easy way out, sticking with the learned behavior they were schooled in. War hawks who clothe their psychopathology in socially approved militarism doesn’t make it any less sick in my opinion.

    Abuse alters people, psychologically. That’s the definition of trauma. The organism will never again be as it was before becoming traumatized. What a victim does with the aftermath of trauma varies.

  29. OK, all right, I know what you mean, in a way, everything is biological right? Goddamn this thread. Syphilis induced psychosis, Alzheimer’s dementia, and the crazy we see a neurologist for, is that what you mean?

  30. No, not really. I was thinking about the preventive effect that smoking may have on the development of Parkinson’s disease.

  31. Look, environment ALWAYS plays a role – in everything. EVERYTHING. Whether something is in the genes or not.
    So, moot point in a large regard. But not thought of that way.

    “What a victim does with the aftermath of trauma varies.”

    You know, I just saw portions of The Natural again this weekend. In the hospital, Glen Close says to Redford ” I believe we have two lives, the one we learn with and the one we live with after that.”

    As great a line as I have heard.

  32. “Mental illness” be it thought disorder, aspergers, ptsd is a normal human response, a sane response to trauma, to an insane world. Mental illness is a form of protest, albeit often involuntary, not an illness and serves in the end to bring society’s attention to the problems that cause mental illness. People don’t get symptoms labeled post traumatic stess disorder from fighting in wars because they are biologically defective, they get these symptoms because war is a horrible event that the human mind respond traumatically too. Same with child abuse….so forth and so on.

  33. “Mental illness is a form of protest, albeit often involuntary, not an illness and serves in the end to bring society’s attention to the problems that cause mental illness.”

    Does it? Because too few are looking at trauma as a problem that causes mental illness. It’s almost always tagged as being about something else instead.

  34. As I’m sure you are aware for decades trauma was assumed to be the cause of mental illness. The entire biopsych model is in part a backlash against the social changes of the last 40 years of the 20th century. The idea that parental behavior harms children was a lot for mainstream folk to take and so it was swept away with a boom in the biopsychiatric meds marketing.

    I’m aware that few are looking at trauma as the problem that causes mental illness. As you know I don’t disagree with you. My concern is that in treating symptoms of child abuse and veteran combat trauma, we hide the problems themselves as the biopsych model is a way to silence dissent. Hurling around psychiatric labels in a place like this is appalling.

  35. …and tell me something Sally, if you don’t like it here and you don’t like what was “hurled” at you by the blog owner when you so rudely trampled her boundaries and continued to do the same to others, then why keep coming back to a place like this?
    FYI, this ain’t an antipsychiatry blog.

  36. Antipsychiatry identified the problem, but did not demonstrate a convincing way around it. Laing always denied he was an antipsychiatrist. He was about understanding human beings, and especially what became of a human being’s understanding of hirself once imbedded in institutionalized psychiatry. Szasz and the myth of mental illness theorists are in a different ballpark. They don’t really care, just dismiss all of it, abandon the patient. That’s the main reason I can’t stand Szasz, and am looking forward to his obit.

  37. Pingback: Finding a Good Scapegoat « Fascism Advocacy Center

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